It’s amazing how the attitudes of doctors change when you get back test results that show an abnormality. After two years of wishy-washy test results, saying something might me wrong but nobody could figure out what, I think most doctors had started to think I was making everything up. Honestly, after being treated that way for the better part of a year I was starting to question it myself. Maybe I had turned into a hypochondriac who was just depressed and looking for a way out. But finally, something came back and abnormal. To most people an abnormal test result is terrifying and certainly not something to hope for. For those of us managing a chronic and difficult to diagnose disease it can be a lifesaver.
Walking into the doctor’s office after my result was a bit interesting. The doctor who had from the beginning shown that he questioned my symptoms was like a completely different person. Now I deserved actual treatment. Now I deserved a referral to a specialist in order to really nail the diagnosis down. A medication that I had been trying to get for many months was offered without question. Keep in mind, this medication is not a barbiturate, not an opioid, produces no “high” and is not at all addictive. It just decreased nerve pain. And it did. For the first time in about two years I had a few hours of relief.
It amazes me and infuriates me that it took this test to convince doctors that I am unwell, that something is indeed wrong. Interestingly we are now deciding between the two diagnoses that I have said were the possible ones all along. But now the doctors believe me and agree.
It’s sad that we live in a world where people in pain are made to feel like they are making it up when a single blood panel comes back normal. I had a pain specialist point blank tell me that since I didn’t have a bulging disk in my neck I couldn’t be in pain. Said that to my face as I sat there crying and hunched over. I was told that I was just overly stressed and excitable. All too often women are told it’s all in their heads.
It’s taken two years to finally be taken seriously by doctors. I’m lucky, most people end up on the doctor-merry-go-round for at least 5 years before getting somewhere.
Here’s to being a loud, obnoxiously well versed in medical research, stubborn, squeaky wheel, non-med compliant patient.
I may be annoying to some doctors, but I finally got a possible diagnosis. It shouldn’t have taken a painful, expensive and exhausting test to be taken seriously.